Autism

 

News

 

4/1/2018

April 2018: Autism Awareness & Acceptance

Autism Acceptance: AUCD envisions a future in which all people - including those living with autism and related developmental disabilities - are fully included, participating members of their communities. Autism Awareness: We advocate for equitable access to supports and services that lead to self-determination, independence, productivity, and a healthy and satisfying quality of life.

 
 

4/25/2018

Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families

This study comparee barriers to autism spectrum disorder (ASD) diagnosis and current ASD-related service use among non-Latino white (NLW) families and Latino families with English proficiency (L-EP) or limited English proficiency (L-LEP).

 
 

4/23/2018

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial

Training parents of youth with autism spectrum disorders to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders.

 
 

4/20/2018

Autism CARES Webinar Series: Call for Presenters

In the coming months, ITAC and SPHARC (with support from HRSA-MCHB and a planning committee of Autism CARES grantees) will host a three-part webinar series; the theme is: "Autism in the Context of Ableism: Culture, Identity, and Quality of Life." The committee is currently seeking input for a solution-focused panel of grantees (and representatives from outside organizations) who can share best practices, innovative approaches, and lessons learned with respect to addressing ableism across contexts.

 
 

4/20/2018

Changes in Intrinsic Local Connectivity After Reading Intervention in Children with Autism

Most of the existing behavioral and cognitive intervention programs in autism spectrum disorders (ASD) have not been tested at the neurobiological level, thus falling short of finding quantifiable neurobiological changes underlying behavioral improvement.

 
 

4/20/2018

Changes in Intrinsic Local Connectivity After Reading Intervention in Children with Autism

Most of the existing behavioral and cognitive intervention programs in autism spectrum disorders (ASD) have not been tested at the neurobiological level, thus falling short of finding quantifiable neurobiological changes underlying behavioral improvement.

 
 

4/20/2018

Review of Autism Screeners for Very Young Children with or at Risk for Autism Spectrum Disorders

Screening for autism spectrum disorders (ASD) at 18 and 24 months has been a standard American Academy of Pediatrics recommendation since 2007. However, research over the last two decades about the early emergence of autism symptoms has prompted a number of researchers and clinicians to create screening instruments and strategies for earlier ages.

 
 

4/19/2018

AIR-B Network Activities

The Autism Intervention Research Network for Behavioral Health (AIR-B) provides a free annual community conference to increase awareness of autism services, current research, and evidence-based interventions in the local regions of each of its network partners: University of Pennsylvania, UC Davis MIND Institute, University of Rochester, and University of California, Los Angeles. Experts in the network share their expertise and invite other prominent autism advocates to discuss topics ranging from non-clinical based autism interventions, to parent advocacy, to school-based transition supports for students with autism.

 
 

4/19/2018

AIR-P Network Activities

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on reaching underserved communities.

 
 

4/19/2018

Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences

The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .

 
 

4/19/2018

Autism Town Hall: Partnering with Primary Care Pediatricians, Meaningful Inclusion, and Gender Differences

The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts .

 
 

4/19/2018

Better Together: Developmental Screening and Monitoring Best Identify Children who Need Early Intervention

Children at risk of developmental disabilities or delays who receive both monitoring and screening are more likely to receive the early interventions they need than their peers who receive either monitoring or screening, according to a study led by Dr. Brian Barger-a researcher at the Georgia State University and Policy Fellow with the "Learn the Signs. Act Early." team at NCBDD.

 
 

4/19/2018

IACC Summary of Advances in Autism Spectrum Disorder Research 2017

The 2017 Summary of Advances provides short, plain language summaries of the top 20 research articles selected by the Interagency Autism Coordinating Committee (IACC). The studies selected for 2017 have provided new insight into potential biomarkers to predict risk of autism spectrum disorder (ASD), developmental trajectories of children with ASD, and the impact of the various prenatal exposures on ASD risk. The advances also include studies that investigated treatments and interventions for both ASD and co-occurring conditions, the impact of policy changes on ASD health care spending, patterns of injury mortality, and prevalence differences across demographic groups.

 
 

4/19/2018

NJLEND Presents Twice Born: Stories from the Special Delivery Unit

New Jersey's Leadership Education in Neurodevelopmental and Related Disabilities program (NJLEND) at Rutgers University, hosted Twice Born: Stories from the Special Delivery Unit, a continuing education event highlighting the principles of family-centered care. The session shed light on one family's experience with fetal surgery, the intricacies of navigating the healthcare system, and the complex relationships between healthcare professionals and parents as shown in the Emmy Award-winning PBS series.

 
 

4/19/2018

Transitions Over the Life Course For Individuals with Autism

Early identification of and intervention for autism spectrum disorder (ASD) have traditionally garnered a significant portion of public attention and spending. However, with an estimated 60,000 youth on the autism spectrum turning 18 years old in 2016*, understanding the factors associated with risk and resilience in adulthood is of significant public health importance. Notably, both research and anecdotal accounts indicate that adults with autism tend to suffer from poor life course outcomes, including but not limited to unemployment, underemployment, and social disengagement. The Health Care Transitions Research Network (HCTRN) was thus designed as an interdisciplinary, multi-center research forum for scientific collaboration and infrastructure-building, with a focus on research designed to improve health care transitions and promote an optimal transition to adulthood among youth and young adults with ASD .

 
 

4/19/2018

Update from the Division of MCH Workforce Development

Autism Awareness Month is a perfect time to acknowledge the many ways in which the Autism CARES grantees make a difference in the lives of children with ASD and other developmental disabilities (DD), and their families. This quarter's MCHB Minute is about our gratitude for all that you do!

 
 

4/19/2018

Updates from the State Public Health Autism Resource Center

This cohort has continued participating in monthly technical assistance calls, and through these calls, there has been a lot of discussion around grantee needs for more support and guidance around the Telehealth/education piece of their work. The 2018 Peer-to-Peer Exchange will be held in mid-April in Spokane, WA with a focus on creating connections for children and their families, self-advocates, and providers through Telehealth services. The meeting will feature the Washington State Department of Health team and their partners. During this meeting, participants will learn how the WA team (and others) have collaborated with different partners, addressed challenges around serving culturally and linguistically diverse families, and establishing buy-in to effectively provide Telehealth services in their communities. Stay tuned for the December 2018 Developments issue for our lessons learned from the meeting!

 
 

4/18/2018

Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders Journal of Autism and Developmental Disorders

Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their individualized education plan (IEP) compared to children of parents whose primary language was not English.

 
 

4/16/2018

Screening for Autism with the SRS and SCQ: Variations across Demographic, Developmental and Behavioral Factors in Preschool Children.

The Social Communication Questionnaire (SCQ) and the Social Responsiveness Scales (SRS) are commonly used screeners for autism spectrum disorder (ASD). Data from the Study to Explore Early Development were used to examine variations in the performance of these instruments by child characteristics and family demographics.

 
 

4/13/2018

Android Robot-Mediated Mock Job Interview Sessions for Young Adults with Autism Spectrum Disorder: A Pilot Study

The feasibility and preliminary efficacy of an android robot-mediated mock job interview training in terms of both bolstering self-confidence and reducing biological levels of stress in comparison to a psycho-educational approach human interview was assessed in a randomized study.Young adults with ASD were randomized to participate either in a mock job interview training with our android robot system or a self-paced review of materials about job-interviewing skills.

 
 

4/12/2018

Do Early Caregiver Concerns Differentiate Girls with Autism Spectrum Disorders?

Given that early caregiver concerns may be different for children who go on to receive a diagnosis of autism spectrum disorder versus another developmental disability, early caregiver concerns may differ for girls. Using a community-based sample of children (n = 241), we examined the extent to which gender differences may be related to caregiver concerns prior to a diagnosis of autism spectrum disorder or other developmental disability.

 
 

4/10/2018

Mid-life Social Outcomes for a Population-based Sample of Adults with ASD

Adults with autism spectrum disorders (ASD) fall short of social outcomes of non‐ASD peers in mid‐life, as documented by currently published research. The aim of the current study was to extend what is known about social functioning, employment, independent living, and use of social services by examining details of the current life status for a population‐based sample of adults with ASD (mean age = 35.5 years, range = 22.2�51.4). We collected outcome data via direct assessment and informant report for 169 individuals. Three‐fourths of the sample had cognitive abilities in the intellectually disabled range. Social functioning outcomes, as a single measure, mirror those reported previously for other samples, including samples with a high proportion of individuals with normal range intellectual abilities, with 20% achieving the most independent outcomes and 46% requiring high levels of support across most life areas. Participant subgroups who achieved maximal outcomes represented a range of social and intellectual abilities for several outcome metrics. Participants used high levels of public and private supports, yet specific areas of clear, unmet need were also identified.

 
 

4/9/2018

SPARK: A US Cohort of 50,000 Families to Accelerate Autism Research

The Simons Foundation Autism Research Initiative (SFARI) has launched SPARKForAutism.org, a dynamic platform that is engaging thousands of individuals with autism spectrum disorder (ASD) and connecting them to researchers. By making all data accessible, SPARK seeks to increase our understanding of ASD and accelerate new supports and treatments for ASD.

 
 

4/6/2018

Overview and Preliminary Evidence for a Social Skills and Self-Care Curriculum for Adolescent Females with Autism: The Girls Night Out Model

A majority of social skills research in autism spectrum disorder (ASD) and interventions target school age males and no published studies target adolescent females with ASD or related disabilities. Females with ASD are at risk for internalizing symptoms, and experience greater challenges in socialization and communication as social demands become increasingly complex in adolescence.

 
 

4/5/2018

Factors Associated with Sustained Community Employment Among Adults with Autism and Co-occurring Intellectual Disability (WI UCEDD/LEND)

Sustaining community employment is a challenge for adults with autism, especially for those who have co-occurring intellectual disability. This study explored the impact of contextual influences, family factors, & individual characteristics on sustained employment.

 
 
You cannot generalize your experiences with that one child to all children with autism. (iStockPhoto)

4/4/2018

10 Things Everyone Should Know About Autism

Check out this AUCD member authored article to kick off #autismAwareness #autismAcceptance month! The article's author, Lisa Shulman, M.D., is a Neurodevelopmental Pediatrician and Director of Autism Clinical Services at the Rose F. Kennedy Children's Evaluation & Rehabilitation Center, RFK, LEND/UCEDD at Montefiore Health System and Professor of Pediatrics at Albert Einstein College of Medicine. She is also the AUCD/CDC Act Early Ambassador for the state of New York, where she works to raise awareness about the importance of early identification of autism and other developmental disabilities so that children can benefit from early intervention services and achieve a best outcome.

 
 

4/3/2018

Parents taking action: A psycho-educational intervention for Latino parents of children with autism spectrum disorder

Results are promising in the use of a "Promotora de Salud" model of intervention delivery among Spanish-speaking mothers of children with ASD. With input from a community-based organization, researchers found that the culturally derived intervention was both feasible to implement & acceptable to participants.

 
 

3/29/2018

Strong Center for Developmental Disabilities (NY UCEDD) Spring Webinar Series

The Rochester Regional Center for Autism Spectrum Disorder (RRCASD), a program within the Strong Center for Developmental Disabilities, UCEDD, announces its free Spring Webinar Series.

 
 

3/29/2018

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) TRIAD Study Affirms Effectiveness, Promise of Telemedicine for Autism Evaluations

Researchers at the Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) have found that autism spectrum disorder (ASD) can be accurately diagnosed in young children via remote, telemedicine assessments, a method that could significantly increase access and reduce wait times for autism services.

 
 

3/29/2018

VT LEND Self-Advocate Fellow receives Dr. Ruth Christ Sullivan Public Policy Fellowship

Ms. Nicole Leblanc, VT LEND Self-Advocate Fellow, has been awarded the Dr. Ruth Christ Sullivan Public Policy Fellowship with the Autism Society. She will assist with federal, state and local key public policy and advocacy issues impacting millions of individuals and families affected by autism spectrum disorder.

 
 
 

Upcoming Events

SPHARC/ITAC Coffee Talk - Meaningful Inclusion of People on the Autism Spectrum

SPHARC/ITAC Coffee Talk - Meaningful Inclusion of People on the Autism Spectrum  Copy to Calendar

Monday, April 30, 2018
1:00 p.m. - 2:00 p.m. ET
Location: Webinar

AMCHP's State Public Health Autism Resource Center, in partnership with the Interdisciplinary Technical Assistance Center, is proud to host a virtual coffee talk on a hot topic related to Autism in honor of Autism Awareness Month. This coffee talk is focused on the AASET project and will feature Dr. Stephen Shore, the project co-lead. Tune in for an overview of AASET and key strategies for meaningful inclusion of people on the Autism Spectrum in multiple settings, as well as an open discussion among all attendees around this topic of interest.

Read More >

 
 

Past Events

Screening and Linkage to Services for Autism (SaLSA): Study of Patient Navigation for Low Income Families

Screening and Linkage to Services for Autism (SaLSA): Study of Patient Navigation for Low Income Families  Copy to Calendar

Tuesday, April 24, 2018
3:00 p.m. - 4:00 p.m. ET
Location: Webinar

Autism spectrum disorder (ASD) is under-diagnosed and under-treated in young children, particularly in disadvantaged populations. Children from minority and low-income populations receive referral, diagnosis and treatment later and less often, and report having less information about how to obtain care, more problems obtaining care, and fewer support services to connect them to care. This webinar will provide an overview of the Screening and Linkage to Services for Autism (SaLSA) study, which aims to evaluate an autism patient navigator program for low income families with young children who screen positive for ASD. Preliminary results of the study, including individual and system barriers to obtaining screening, referral, early intervention evaluation and services will be described.

Read More >

 
 

Resources

  • 2018 Congressional Autism Caucus

    Learn about the members of the Autism Caucus, which was founded by Representatives Mike Doyle (PA) and Chris Smith (NJ) who also Co-Chair the Coalition for Autism Research and Education (�CARE� or �Autism Caucus�), the first-ever Congressional Membership Organization dedicated to autism advocacy on Capitol Hill.

 
 

ITAC

The Interdisciplinary Technical Assistance Center on Autism and Developmental Disabilities (ITAC) provides technical assistance to LENDs and DBPs to better train professionals to utilize valid and reliable screening tools to diagnose or rule out and provide evidence-based interventions for children with ASD and other developmental disabilities. The ITAC website contains news, resources, and information tailored for LENDs and DPBs as well as the medical and public health communities and families of children with ASD/DD. ITAC and its projects were designed in collaboration with federal staff, program directors, and families of children with autism spectrum disorders and other developmental disabilities.

www.aucd.org/itac.