Council on Leadership in Advocacy (COLA)

 

Purpose

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The purpose of the Council on Leadership and Advocacy (COLA) is to enhance the Association of University Centers on Disabilities by fostering current and new leaders with lived experience of disability, including their family members, to promote leadership in their programs and communities. Council membership will expand to include directors, faculty, staff, and advisers at center programs, and CAC members.

 
 

How COLA Relates to AUCD and Its Work

COLA works to enhance AUCD by fostering and supporting current and new leaders with lived experience of disability, including their family members in order to promote this same leadership in their programs, communities, and regions, and to serve in liaison roles with local disability leadership. The Council helps the association to:

  • Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
  • Build the capacity of UCEDD Consumer Advisory Committees.
  • Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
  • Assist in the development of standards for participation of people with disabilities and family members in AUCD network centers and programs
  • People with disabilities and family members participate in program planning, research, and evaluation.

 
 

Membership

The Council on Leadership in Advocacy, also known as COLA, is made up of individuals with disabilities and family members from each AUCD network center and program. COLA members are involved in Community Advisory Councils at UCEDDs, AUCD Councils and Committees, AUCD Special Interest Groups, and other advocacy opportunities. Membership is open to anyone in the AUCD network. However, each center will designate an individual representative who will cast one vote when a matter before the Council requires such action.

 
 

2018 Focus Areas

The 2018 COLA annual plan has been drafted to align with the AUCD 2018 Strategic Map.

 

  • Diversity & Equity: Utilize network resources to support COLA membership.
  • Leadership: COLA membership champions and model diversity, equity, and inclusion.
  • Research: 1) Increase visibility of COLA within AUCD network; 2) COLA is an integral partner to strengthen network engagement and collaboration; 3) People with I/DD &/or family members lead or direct research within AUCD network.
  • Policy: COLA contributes to AUCD network policy, practices, and research.
 
 

COLA Leadership

 
 

Upcoming Events
of Interest to
COCA Members

Transition in Autism Spectrum Disorders  Copy to Calendar
Wednesday, January 30, 2019

Sex Talk for Self-Advocates Webinar #4  Copy to Calendar
Wednesday, February 13, 2019

Diversity in Autism Spectrum Disorders  Copy to Calendar
Monday, March 18, 2019

More Events >

 
 

NEW ON THE COLA
WEB PAGES

 

1/14/2019

UM Law Students Research Disability Access at Vacation Rentals (MT UCEDD)

The Americans with Disabilities Act, passed in 1990, protects people with disabilities against discrimination in employment settings, state and local government services, and public-serving businesses. As vacation rental properties such as Airbnb and VRBO grow in demand and straddle the line between private residences and public business, how or if ADA applies was - until recently - somewhat unclear. Law students at the University of Montana set out to provide some answers to this and other ADA questions.

 
 

1/10/2019

Aetna Medicaid Announces New Innovative Approach for Members With Intellectual and Developmental Disabilities (MO UCEDD)

Aetna Medicaid, a CVS health business (NYSE: CVS), has announced an outcomes-based model for members with intellectual and development disabilities (IDD). The new model, which will launch on January 1, 2019 in Kansas, will be partially based on the Charting the LifeCourse framework developed by the University of Missouri-Kansas City (UMKC) Institute for Human Development, Missouri's University Center for Excellence in Developmental Disabilities Education, Research and Services.

 
 

1/8/2019

Tuesdays with Liz: Welcome to the 116th United States Congress!

With the 116th Congress in session as of January 3, 2019, Liz wants YOU to know there is no reason to be scared of contacting your Congressperson! Here, she reminds you to feel comfortable about sharing your story and advocating yourself, and how you can contact your Congressperson.

 
 

1/4/2019

Professional Fellows Program for Inclusive Disability Employment

AUCD is excited to announce that the host application for the International Professional Fellows Program for Inclusive Disability Employment (PFP-IDE) is now open. PFP-IDE is a new U.S. Department of State professional exchange program that will enable 20 emerging leaders in inclusive employment from Kenya, Tanzania and Uganda to participate in a five-week Fellowship in the U.S. where they will learn about disability rights and inclusive employment.

 
 

1/2/2019

Working to Improve the Patient Experience (AL LEND)

Each year, LEND Trainees at the Civitan-Sparks Clinics in Birmingham, Alabama develop a project that will aid in improving the experience of our patients. As an interdisciplinary clinic, families who come into the Civitan-Sparks Clinics see a wide variety of professionals, including Speech/Language Therapy, Occupational Therapy, Nutrition, Pediatrics, Audiology, Psychology, and Dental. As such, many parents are unsure of what to expect from a visit with each of these disciplines, particularly when they are new to our clinic. Additionally, while the range of areas of concerns that families come in with is broad, visits to each of our disciplines are largely the same clinic to clinic.

 
 

12/21/2018

Georgia LEND hosts David Satcher Lecture on Leadership on the Elimination of Health Disparities

Georgia State University's (GSU) Georgia Leadership Education in Neurodevelopmental Disabilities (GaLEND) Program - housed within the Center for Leadership in Disability (CLD) - has had a partnership with the Satcher Health Leadership Institute at the Morehouse School of Medicine extending back to 2010. GaLEND recruits a fellow who participates in the Health Leadership Policy Fellowship at Morehouse School of Medicine and GaLEND at GSU concurrently. In 2015, GaLEND and the Satcher Health Leadership Institute created a partnership with Emory's Center for Excellence in Maternal Child Health (MCH). These three institutions offer the MCH Leadership Collaborative each Fall semester which draws students and faculty from across the three institutions to prepare for leadership in a rapidly changing world.

 
 

12/21/2018

he Center for Diversity in Public Health Leadership Training at Kennedy Krieger 2019 Center Activities (MD UCEDD/LEND)

The Center for Diversity in Public Health Leadership Training at Kennedy Krieger Institute provides innovative and real-world experiential learning for diverse undergraduate, post-baccalaureate and graduate school scholars interested in maternal and child, public health, and eliminating health disparities.

 
 

12/21/2018

Michigan Development Disabilities Institute (UCEDD-MI) Awarded Nearly $1 Million Grant from Michigan Health Endowment Fund

Awards will support older adult caregiver programs

The Michigan Health Endowment Fund has awarded nearly $1 million to two Wayne State University programs that protect and enhance the well-being of our area's older adults and caregivers. The Health Fund granted $413,903 to Dr. Peter Lichtenberg's program, SAFE: Caregiver Empowerment, and $500,000 to the Michigan Development Disabilities Institute (MI-DDI) for its program, Michigan Older Caregivers of Emerging Adults with Autism and other Neurodevelopmental Disabilities (MI-OCEAN) Family Support Project.

 
 

12/21/2018

Organization for Autism Research: Request for Applications

Since 2002, the Organization for Autism Research (OAR) has spent more than $3.7 million in support of autism research. OAR invites researchers to submit pre-proposals to the 2019 Applied Research Competition. Applications are due Monday, March 25, 2019.

 
 

12/21/2018

Organization for Autism Research: Request for Applications

Since 2002, the Organization for Autism Research (OAR) has spent more than $3.7 million in support of autism research. OAR invites researchers to submit pre-proposals to the 2019 Applied Research Competition. Applications are due Monday, March 25, 2019.

 
 

12/21/2018

Organization for Autism Research: Request for Applications

Since 2002, the Organization for Autism Research (OAR) has spent more than $3.7 million in support of autism research. OAR invites researchers to submit pre-proposals to the 2019 Applied Research Competition. Applications are due Monday, March 25, 2019.

 
 

12/21/2018

Remembering Betty Williams (IN LEND)

Betty Williams, long time leader in the self-advocate community and The Arc of Indiana's Self-Advocacy Training Coordinator, passed away peacefully this afternoon surrounded by family and close friends. A fighter to the end, Betty left us on her own terms, in her own way and at her own time. For so many of us, we can't imagine a world without her but think for a moment what the world would be like if we had not had her. She championed so many issues. She fought so many causes. She changed so many minds, and, most importantly, she empowered so many people.

 

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